In order to promote your child's road toward a cure, we need you to be part of our contact list. When we approach clinicians, pharma companies and researchers, they are interested in our contact information.

We will never send your data to any entity without your full agreement. But we do share aggregated data information like the gene list and the # of patients per gene that we can contact. When research opportunities arises we will contact you in person to offer you the option to participate  

Only with numbers can we attract pharma toward basket clinical trials, so you are truly needed.